Help make research into metabolic diseases possible Fund
About
My 8 year old daughter has a progressive incurable metabolic disease. Little by little this disease is destroying her brain and ability to function and she will pass away prematurely.
Metabolic diseases are one of the leading causes of death among children in the Netherlands.
The Metakids foundation is raising money to fund research into metabolic diseases. The mission of Metakids is to do everything they can to ensure that in 10 years, half of metabolic diseases can be treated.
I will join the Dam-tot-Dam-loop in Amsterdam on September 21, I will walk 20km at that event to raise money for Metakids; https://evenementen.voormetakids.nl/fundraisers/johan-schoofs
Finding a cure for my daughter will probably be too late, but I hope that we can raise money to make more research possible. So that one day a cure for metabolic diseases can be found and all children can have a bright future.
I created this fund to bring Metabolic diseases and the Metakids foundation under your attention and hope you will donate and help Metakids in their good cause.
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